Rare disease information directory.
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Rare disease information directory.

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Published by Public Health Service in [Washington, D.C.? .
Written in English


  • Rare diseases -- Information services -- Directories.

Book details:

Edition Notes

Shipping list no.: 96-0104-P.

ContributionsUnited States. Public Health Service.
The Physical Object
Pagination1 sheet.
ID Numbers
Open LibraryOL15416834M

Download Rare disease information directory.


Rare Diseases Database, National Organization for Rare Disorders: NORD [On-site Access Only for full contents] Rare Diseases Information, NIH Red Book Online [On-site Access Only - See Reference Librarian for login information ]. Browse the GARD list of rare diseases and related terms to find topics of interest to you. This list includes the main name for each condition, as well as alternate names. Inclusion on this list does not serve as official recognition by the NIH that a disease is rare. Genetic and Rare Diseases Information Center (GARD) - PO Box , Gaithersburg, MD - Toll-free: contact gard Office of Rare Disease Research Facebook Page Office of Rare Disease Research on Twitter. "Rare Diseases and Orphan Drugs: Keys to Understanding and Treating the Common Diseases bridges our understanding of the common diseases and the rare diseases. This unique and much-needed book provides an insightful glimpse of how biomedical research will play out as the rare diseases take an increasing role in the way we understand and treat.

For language access assistance, contact the NCATS Public Information Officer. Genetic and Rare Diseases Information Center (GARD) - PO Box , Gaithersburg, MD - Toll-free: 1 . GARD maintains a list of rare diseases and related terms to help people find reliable information. In the United States, a rare disease is defined as one that affects fewer than , people. The prevalence of a rare disease usually is an estimate and may change over time. Books that deal with the spread of a virus or deadly illness that affects the world in a big way Score A book’s total score is based on multiple factors, including the number of people who have voted for it and how highly those voters ranked the book. Please note that NORD provides this information for the benefit of the rare disease community. NORD is not a medical provider or health care facility and thus can neither diagnose any disease or disorder nor endorse or recommend any specific medical treatments.

NORD partners with Frontline Medical Communications to provide information about rare diseases to physicians and other healthcare professionals. Recent publications include the following. To obtain printed copies, write to Elizabeth Katz at [email protected]. Neurological Rare Disease Special Report. Neurological Rare Disease Special Report. The NORD Rare Disease Video Library houses educational videos on rare diseases for patients, caregivers, students, professionals and the public. NORD works with medical experts and patient organizations to develop the videos, which are made possible by individual donations, educational grants and corporate sponsorship. NORD is solely responsible for the content.   The Genetic and Rare Diseases Information Center (GARD) was created in by the National Human Genome Research Institute (NHGRI) and the Office of Rare Diseases Research (ORDR) - two agencies at the National Institutes of Health (NIH).GARD provides immediate, virtually round-the-clock access to experienced information specialists who can furnish current and accurate information . The National Organization for Rare Disorders (NORD) is a nonprofit voluntary health agency that serves as a clearinghouse for information on rare disorders. A rare disorder is a disease or condition that affects fewer than , Americans. Cumulatively, there are more than 7, rare diseases affecting more than 30 million Americans. NORD is committed to the identification.